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Notices include announcements from MDS members and from nonprofit organizations with news of interest or a call for action (research, patient activities, scholarships, studies, etc.).

 

NIH Seeks Patients With Parkinson's Disease for Research Study

Posted 6/29/2017

The National Institutes of Health (the NIH) has a new research study to recruit patients who have PD, are on an MAO inhibitor, and are not on levodopa. The purpose of the study is to find out if a drug called N-acetylcysteine (NAC) might be beneficial, by decreasing damage caused by oxidative stress in dopamine neurons in the brain.

Protocol website: NIH Protocol No. 17-N-0076

For more information, contact:

David S. Goldstein, MD PhD, Senior Investigator, NINDS/NIH
Email: goldsteind@ninds.nih.gov 
Phone: +1 (301) 675-1110

Filmmakers Looking for Job Seekers With Neurological and Movement Disorders

Documentary producers at Optomen USA are looking for people with neurological conditions and movement disorders such as Tourette Syndrome who would like our assistance finding employment on the documentary TV series "Employable Me." EmployableMe seeks to prove that having a neurological condition or disability can be viewed as an asset rather than an obstacle in the workplace. High profile companies and brands are beginning to discover the benefits of recruiting from the ranks of those whose “brains are wired differently.”

The job-seekers selected to appear on our documentary series will be encouraged to unlock their hidden talents with the help of experts and specialists so they can at long last find a job that best suits their unique skill sets and strengths. Please visit our series page to view episodes of our TV series. A diverse workforce can be great for a business and Employable Me wants to dramatically shake up the system to prove it.

Contact Liz.Alderman@OptomenUSA.com for more information on how to be considered for this opportunity.

Lecture Series on Parkinson's Disease Launches

AMPARO: A NeuroMat network to empower persons with Parkinson's disease in shaping therapeutic strategies

The Research, Innovation and Dissemination Center for Neuromathematics has launched a network to promote the collaboration of people living with Parkinson's disease, families and health professionals to face clinical and research challenges associated with Parkinson’s disease. This initiative, called AMPARO in Portuguese, is coordinated by the NeuroMat investigator Maria Elisa Pimentel Piemonte, a physical therapist and professor at the University of São Paulo in Brazil.

The first lecture launched on October 24, 2016 with Michelle Hyczy de Siqueira Tosin. Tosin is a nurse from the International Center of Neurorehabilitation and Neuroscience SARAH, in Rio de Janeiro. The talk “How to improve the efficiency of antiparkinsonian medications through the better management” will be streamed online on YouTube.

AMPARO expects to build a shared set of evidence-based practices collaboratively built to establish a common understanding of challenges persons with Parkinson’s disease face in Brazil and to have an impact on clinical policies and research projects associated to this disease. According to Piemonte, the organizational ambition is to establish a “horizontal network,” in which everyone who is interested may provide inputs.

According to Piemonte, “The creation of this network rests upon involving people with Parkinson’s and relatives as fundamental partners in the challenge of improving services that target this disease, promoting a broad discussion on clinical strategies and the role of associations to support families.” A medium-term goal of AMPARO is to have an impact on the development of a specific line of care for Parkinson's disease in Brazil. This should be a participatory and integrated process, Piemonte added.

Tourettes Action Offers Non-Financial Support to Researchers and Students for Studies

Interested in conducting Tourette Syndrome research? Tourettes Action (UK) offers non-financial support to researchers/research students wishing to recruit people for their research studies.

Tourette Syndrome is an inherited neurological condition causing involuntary and uncontrollable motor and vocal tics which can be painful, disabling and affect the quality of life of over 300,000 people in the UK.

There are many ways we can help to publicize your research project (newsletter, Facebook, Twitter, forums, email etc). Please contact Tourettes Action Research Manager Seonaid Anderson at Seonaid@tourettes-action.org.uk for more information.

 

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