Notices include announcements from MDS members and from nonprofit organizations with news of interest or a call for action (research, patient activities, scholarships, studies, etc.).
Sign petition to make September 'Dystonia Awareness Month'
Despite being the third most common movement disorder, most people have never heard of dystonia. Affecting an estimated 500,000 people in North America, dystonia causes the brain to send improper signals to muscles, resulting in awkward, often painful, movements and postures.
Dystonia affects people of all ages and can make it difficult to perform even simple tasks like walking, talking, eating, drinking, and even breathing. There is currently no cure for dystonia and it is not unusual for people to wait years to decades for a diagnosis.
Having an officially recognized awareness month will bring much needed attention to this disorder and hopefully lead to prompter diagnoses, better treatments, and someday a cure.
Please take a minute to add your signature to the petition to make September "Dystonia Awareness Month." You could be changing someone's life.
Looking for patients with chorea-acanthocytosis or McLeod syndrome
We are planning a patient/caregiver meeting in the US in 2016 for people affected by CHOREA-ACANTHOCYTOSIS or MCLEOD SYDROME. If you have a patient with either of these neuroacanthocytosis syndromes who might be interested in attending, please ask them to email Ginger Irvine at the Advocacy for Neuroacanthocytosis Patients. As these are such rare conditions we want to reach all who are affected in order to determine if there is interest. Any other questions, please email firstname.lastname@example.org
Movement Disorder Research Grant Offered by the Jacques and Gloria Gossweiler Foundation
Application deadline: September 30, 2015
A grant will be offered as an individual fellowship to support an outstanding postdoctoral scientist or clinician running a research program in an internationally acknowledged institution working in the field of non-pharmaceutical treatment of Parkinson’s Disease and other Movement Disorders.
Initially the fellowship will be granted for a 2-year period, with a possible extension of the period to a maximum of 4 years. The grant includes the salary for the fellow at a postdoctoral level as well as equipment, if needed.
Neurology Scientific Advisory Board to the JGGF: Prof. Dr. med.Giovanni Abbruzzese, Genova, Italy; Dr. Ralf Reilmann, M.D. PhD, Münster, Germany; Prof Dr. med. Jean-Marc Burgunder, Bern, Switzerland.
Further details may be found on this website.
Tourettes Action Offers Non-Financial Support to Researchers and Students for Studies
Interested in conducting Tourette Syndrome research? Tourettes Action (UK) offers non-financial support to researchers/research students wishing to recruit people for their research studies.
Tourette Syndrome is an inherited neurological condition causing involuntary and uncontrollable motor and vocal tics which can be painful, disabling and affect the quality of life of over 300,000 people in the UK.
There are many ways we can help to publicize your research project (newsletter, Facebook, Twitter, forums, email etc). Please contact Tourettes Action Research Manager Seonaid Anderson at Seonaid@tourettes-action.org.uk for more information.