Notices include announcements from MDS members and from nonprofit organizations with news of interest or a call for action (research, patient activities, scholarships, studies, etc.).
Lecture series on Parkinson's disease to launch October 24, 2016
AMPARO: A NeuroMat network to empower persons with Parkinson's disease in shaping therapeutic strategies
The Research, Innovation and Dissemination Center for Neuromathematics has launched a network to promote the collaboration of people living with Parkinson's disease, families and health professionals to face clinical and research challenges associated with Parkinson’s disease. This initiative, called AMPARO in Portuguese, is coordinated by the NeuroMat investigator Maria Elisa Pimentel Piemonte, a physical therapist and professor at the University of São Paulo in Brazil.
The first lecture, which will officially launch the initiative, is scheduled for October 24, 2016 with Michelle Hyczy de Siqueira Tosin. Tosin is a nurse from the International Center of Neurorehabilitation and Neuroscience SARAH, in Rio de Janeiro. The talk “How to improve the efficiency of antiparkinsonian medications through the better management” will be streamed online on YouTube.
AMPARO expects to build a shared set of evidence-based practices collaboratively built to establish a common understanding of challenges persons with Parkinson’s disease face in Brazil and to have an impact on clinical policies and research projects associated to this disease. According to Piemonte, the organizational ambition is to establish a “horizontal network,” in which everyone who is interested may provide inputs.
According to Piemonte, “The creation of this network rests upon involving people with Parkinson’s and relatives as fundamental partners in the challenge of improving services that target this disease, promoting a broad discussion on clinical strategies and the role of associations to support families.” A medium-term goal of AMPARO is to have an impact on the development of a specific line of care for Parkinson's disease in Brazil. This should be a participatory and integrated process, Piemonte added.
Michael J. Fox Foundation survey seeks clinician participants
The Michael J. Fox Foundation is surveying clinicians on their experiences with Rytary in order to gain a better understanding of the challenges associated with it, as well as benefits and side effects. Information gained from these surveys will be used to inform our educational, research funding and public policy efforts.
If you are interested in participating, please visit this link.
Thanks for your valuable input!
Tourettes Action offers non-financial support to researchers and students for studies
Interested in conducting Tourette Syndrome research? Tourettes Action (UK) offers non-financial support to researchers/research students wishing to recruit people for their research studies.
Tourette Syndrome is an inherited neurological condition causing involuntary and uncontrollable motor and vocal tics which can be painful, disabling and affect the quality of life of over 300,000 people in the UK.
There are many ways we can help to publicize your research project (newsletter, Facebook, Twitter, forums, email etc). Please contact Tourettes Action Research Manager Seonaid Anderson at Seonaid@tourettes-action.org.uk for more information.