Notices include announcements from MDS members and from nonprofit organizations with news of interest or a call for action (research, patient activities, scholarships, studies, etc.).
Advanced Parkinson Study Day
Sponsor: NCORE / Derby Teaching Hospitals / NHS Foundation Trust
Date: May 9, 2016
Venue: Derby, Great Britain
The training will cover multidisciplinary management of Parkinson's disease with the main emphasis on the more advanced stages. Management of the hospitalized Parkinson's patient will also be addressed. Motor and non-motor symptoms will be covered and principles of theapeutic management will be followed by individual discipline workshops led by a clinical specialist in the field of Parkinson's disease.
Aims & Objectives
To gain an understanding of the problems and management of Parkinson's disease. To understand the impact and implications of hospitalization of people with Parkinson's disease. To increase knowledge of the impact and management of some non-motor symptoms and to gain knowledge of the best practice and current evidence based therapy management of Parkinson's disease, including Physiotherapy, Occupational Therapy, Speech & Language Therapy and Nursing.
For full details visit www.ncore.org.uk or call + 01 332 254 679.
Location: Nottingham, United Kingdom
March 17-18, 2016
LSVT BIG is designed to train physical and occupational therapy professionals and students in an intensive whole body amplitude-based training protocol for individuals with Parkinson's disease. Open to physiotherapists and occupational therapists, and students. Learning will be by lecture, demonstration and case study presentations.
Key Objectives – upon completion the participant will be able to:
Provide rationale for using a single target of amplitude when working with patients with Parkinson’s disease
Correctly identify at least 3 key principles used in LSVT BIG that drive activity dependent neuroplasticity
Discuss efficacy findings that support use of LSVT BIG for persons with Parkinson’s disease
Provide the rationale for each of the Maximal Daily Exercises
Describe the correct performance techniques of the LSVT Maximal Daily Exercises
Given patient scenarios of patients with Parkinson’s disease with various levels of function, describe how to adapt or progress LSVT BIG treatment. For full learning outcomes visit www.ncore.org.uk
Tel: +01332 254679
Looking for patients with chorea-acanthocytosis or McLeod syndrome
We are planning a patient/caregiver meeting in the US in 2016 for people affected by chorea-acanthocytosis or Mcleod syndrome.
If you have a patient with either of these neuroacanthocytosis syndromes who might be interested in attending, please ask them to email Ginger Irvine at the Advocacy for Neuroacanthocytosis Patients. As these are such rare conditions, we want to reach all who are affected in order to determine if there is interest. Any other questions, please email Dr. Ruth Walker at firstname.lastname@example.org.
Tourettes Action Offers Non-Financial Support to Researchers and Students for Studies
Interested in conducting Tourette Syndrome research? Tourettes Action (UK) offers non-financial support to researchers/research students wishing to recruit people for their research studies.
Tourette Syndrome is an inherited neurological condition causing involuntary and uncontrollable motor and vocal tics which can be painful, disabling and affect the quality of life of over 300,000 people in the UK.
There are many ways we can help to publicize your research project (newsletter, Facebook, Twitter, forums, email etc). Please contact Tourettes Action Research Manager Seonaid Anderson at Seonaid@tourettes-action.org.uk for more information.