Leadership

Task Force on Telemedicine

E. Ray Dorsey, Chair

 

MDS Staff Liaison: Kateri Collins

 

Task Force Members

Jason Aldred
Kevin Biglan
Bastiaan Bloem
Jonathan Carr
Bill Chan
Esther Cubo
Christopher Czura
Nabila Dahodwala
Nicholas Galifianakis
Christopher Goetz

Mark Guttman
Anhar Hassan
Susan Heath
Maya Katz
Suketu Khandhar
Mark Lambert
Dronacharya Lamichhane
Shen Yang Lim
Zoltan Mari
Alex Pantelyat

Amie Peterson
Bernard Ravina
Todd Sherer
Meredith Spindler
Caroline Tanner
Christina Vaughan
Richard Walker
Jayne Wilkinson

 

Current Initiatives:

 

Demand for health care, both domestically and globally, is growing in developing countries; however, access to care continues to be limited in most countries.

Parkinson's disease is a chronic neurodegenerative condition that affects 500,000 individuals in the US and 4.1 million people worldwide, figures that are expected to increase twofold by 2030. Patients living in Brazil, China, and India will collectively account for 69% of the global burden of countries examined by 2030, but worldwide, most people with Parkinson's disease have likely not been diagnosed and never been treated. In China, for example, there are 2 million people with PD but only 50 PD specialists in the entire country. In some regions of the world, none of those who have been identified as having Parkinson's disease have sought or received care for their condition. Forty percent of countries do not have access to anti-parkinsonian therapies. Together, the majority of people with Parkinson's disease in the world likely have not been diagnosed or received medical care for their condition.

Using simple, user-friendly technology, we can extend the reach of the International Parkinson and Movement Disorder Society to provide chronic care to any patient, anywhere in the world. We can educate providers and health care professionals around the world on Parkinson's disease care and management. We can also leverage technology to increase awareness and effectiveness of research in Parkinson's disease.

To help increase access to care and to train providers around the world using technology, The International Parkinson and Movement Disorder Society launched a Telemedicine Task Force in 2012. As part of this effort, we have identified pilot projects in care and education that can lay the foundation for reaching the majority of people with Parkinson's disease.