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Notices include announcements from MDS members and from nonprofit organizations with news of interest or a call for action (research, patient activities, scholarships, workshops, studies, etc.).

Clinical Dangers of Neurogenic Orthostatic Hypotension in Parkinson’s Disease and Related Disorders

Posted 7/25/2019

Sponsored by the Academy for Continued Healthcare Learning

In this easy-to-administer one-hour live complimentary visiting professorship program, hear directly from expert faculty who will review clinical data on therapies for nOH, address barriers and complex clinical scenarios at the point of care, and establish a problem-solving skill set for clinicians to apply to ongoing patient management for those patients with autonomic disorders. Cardiologists, neurologists and the entire treatment team will benefit from increased knowledge on varied presentations of nOH, the mechanisms associated with the disease, common complications, recent changes to disease/diagnostic criteria, and improved treatment options. Learn More

PD Warrior: Neuroplasticity in Parkinson's Disease Courses

Updated 6/24/2019

PD Warrior is an intensive exercise-based program designed to drive neuroplastic change in people with Parkinson’s disease which operates in nearly 70 locations across 8 countries, online, via an app and social community. It is founded by Melissa McConaghy, FACP, a Specialist Neurological Physiotherapist who has been working with Parkinson's patients for 18 years. Over 2,500 allied health professionals have been trained on PD Warrior courses.

The program starts with Level 1 Introductory Online Theory (15 hours) which progresses into a one day Level 2 Practical Workshop. To provide the best experience of delivering the concepts, during the Level 2 course therapists work with volunteer Parkinson's patients. You can purchase the Level 1 Online Course separately or as a bundle with Level 2 which includes a 2 course package discount.

The courses are suitable for physiotherapists, exercise physiologists and occupational therapists with an exercise background. Graduates are welcome. Parkinson's Nurses have also attended the courses for further insight into patient treatment.

Level 2 Workshops

NIH Recruiting Patients with Parkinson's Disease for Research Study

Does N-Acetylcysteine Decrease Spontaneous Oxidation of Central Neural Dopamine in Parkinson's Disease?

Updated 6/24/2019

The National Institutes of Health (the NIH) has a new research study seeking patients who have PD, are on an MAO inhibitor, and are not on levodopa.

The purpose of the study is to find out if a drug called N-acetylcysteine (NAC) might be beneficial, by decreasing damage caused by oxidative stress in dopamine neurons in the brain.

For more information, visit the Protocol website (NIH Protocol No. 17-N-0076) or call +1 (800) 411-1222. 

Edmond J. Safra Visiting Nurse Faculty Program

Posted 2/23/2018

Do you know nursing professors who would like to learn about Parkinson's disease?

The Edmond J. Safra Visiting Nurse Faculty Program at the Parkinson's Foundation has announced program sites and dates for 2018.  

This program educates nurse faculty on the complexities of care for the Parkinson's disease patient and family.  In turn, faculty can educate nursing students on evidenced based current information, and in fact, over 20,000 student nurses are now graduating from school with knowledge of Parkinson's disease.

Nurse faculty who teach geriatrics, adult health, gero-psych, neurology, pathophysiology, pharmacology, chronic care, and community health would benefit from this program. A 40-nursing contact hour approved course, the program provides didactics and mentored clinical time with patients. Scholars also attend a Parkinson's support group and complete an independent project leading to the 40 hours and a stipend of $2,000 provided by the Safra Foundation.

Programs this year will be held in Ohio, Maryland, Massachusetts, Minnesota, Arizona, Alabama, and New York.  We welcome US and international nurse faculty. Scholars who travel to a program would be responsible for their own travel and lodging expenses.  
 
Please visit the website, and refer potential nurse faculty candidates to: www.ParkinsonsNursing.com 

Tourettes Action Offers Non-Financial Support to Researchers and Students for Studies

Interested in conducting Tourette Syndrome research? Tourettes Action (UK) offers non-financial support to researchers/research students wishing to recruit people for their research studies.

Tourette Syndrome is an inherited neurological condition causing involuntary and uncontrollable motor and vocal tics which can be painful, disabling and affect the quality of life of over 300,000 people in the United Kingdom.

There are many ways we can help to publicize your research project (newsletter, Facebook, Twitter, forums, email etc). Please contact Tourettes Action Research Manager Seonaid Anderson at Seonaid@tourettes-action.org.uk for more information.