Dear MDS Colleagues,
While PD diaries have provided valuable information as outcome measures, and often primary endpoints, in clinical trials of symptomatic therapies over the past 20 years, the advent of new technologies has opened the opportunity to reassess the balance between the simplicity of available diaries, almost exclusively designed in paper format, and the need to capture a wider range of individualized motor, non-motor, and circadian complex fluctuations with greater accuracy as an electronic diary/tracker interface (e-diary).
With the aim of bringing the PD diary to the digital age, the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee brainstormed on a set of desirable characteristics and developmental steps for a technology-enhanced diary to serve the needs of both clinical trials and clinical practice. At the request of the Movement Disorders editors, such document is now available for public comment (See links below) as an opportunity for readers who are not Task force members to give feedback online and participate in shaping what the new tool should aim for.
The manuscript will be adapted according to comments and suggestions and all responses will documented online in what is to become “Supplementary Material 1”. The final product is expected to be published in Movement Disorders.
With gratitude for your efforts,
Alberto Espay, MD; Walter Maetzler, MD; and Álvaro Sánchez-Ferro, MD, on behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee.