Multiple System Atrophy
What You Should Know

What Is MSA?

MSA is a rare brain disease. It affects parts of your brain that help you move, keep balance, and control body functions like blood pressure, bladder, and digestion.

What Happens With MSA?

People with MSA might:

• Move slowly or feel stiff
• Shake or tremble
• Have trouble with balance and walking
• Feel dizzy when standing up
• Have trouble controlling urine or poop

MSA is a bit like Parkinson’s disease but has extra problems too.
 

Who Gets MSA?

MSA usually starts between ages 50 and 60. Men and women get it about the same amount. It is very rare.
 

What Causes MSA?

Doctors don’t know exactly why MSA happens. A protein called alpha-synuclein builds up in the brain and causes damage. MSA is usually not passed down in families and is not contagious.
 

How Do Doctors Find Out If You Have MSA?

There is no one test for MSA. Doctors use your symptoms and exams. They may do:

• Brain scans (MRI)
• Tests for bladder and blood pressure changes, like a tilt test

The only sure way to know is after a person passes away and the brain is checked.
 

Can MSA Be Treated?

There is no cure for MSA yet. But doctors can help with some problems:

• Medicines like those for Parkinson’s might help with slow movement or stiffness, but they don’t work for everyone.
• For dizziness when standing up, you can:
  • Drink more water and eat more salt (ask your doctor first)
  • Wear special stockings or belly bands
  • Take medicines that raise blood pressure
• Medicines and other tricks can help with bladder and bowel problems.
• Medicines or injections can help with drooling.
• Physical therapy, occupational therapy, and speech therapy can help you stay active and safe.
   

What Happens Over Time?

MSA usually gets worse slowly. You might find it harder to:

• Use your hands
• Swallow food or drinks safely
• Walk without falling
• Control your bladder or bowel

It is important to plan for care as you get older. You might need extra help at home or in a care facility. Doctors and caregivers can support you and your family.

If you want to talk more about MSA or need help, please ask your doctor or nurse. They can explain and find ways to support you.

 

Copyright © 2018 International Parkinson and Movement Disorder Society (MDS).  All rights reserved.