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International Parkinson and Movement Disorder Society
Main Content

Website Privacy Notice

Last updated January 2019

The International Parkinson and Movement Disorder Society (MDS) has a strong commitment to privacy, recognizing that we are a public association. This statement outlines the policies and procedures concerning information gathering and dissemination practices for our website.

Collecting and Using User Information

MDS collects information in different ways from those who access our sites. We use this information primarily to provide a customized experience as you use our sites and do not share this information with third parties. However, we may disclose personal information collected if we have received your permission beforehand or in very special circumstances, such as when we believe that such disclosure is required by law, or in other special cases described below.

Our sites use order forms for customers to request information, products, and services. We collect users’ contact information (e.g., name and e-mail address) and financial information (e.g., account or credit card numbers). Financial information is used to bill the user for products and services and then is deleted from our records in compliance with the Payment Card Industry Data Security Standard (PCI-DSS). Contact information from the order form is used to send orders, contact the user regarding any problems with the order, and to provide the user with information about our association, including promotional materials. Users may opt out of receiving future communications at any time by contacting the International Secretariat.

Membership Directory

Current MDS members' contact information is made available through the Membership Directory. This information is only available to other current MDS members. Members may opt out of being listed in the Membership Directory; see the Updating User Profile section below.

Disclosure of Personal Information

It is the notice of MDS not to use or share the personal information about users in ways unrelated to the ones described above without also providing you an opportunity to opt out or otherwise prohibit such unrelated uses. However, MDS may disclose personal information about users, or information regarding your use of our site, for any reason if, in our sole discretion, we believe that it is reasonable to do so, including: to satisfy laws, such as the Electronic Communications Privacy Act, regulations, or governmental or legal requests for such information; to disclose information that is necessary to identify, contact or bring legal action against someone who may be violating our Website Terms of Use or other user policies; to operate the site properly; or to protect MDS and our users.

Updating User Profile

Individuals who have created an account with MDS have the ability to update or change all personal information provided. To do so, users may visit the My Profile section of the MDS website, or email the International Secretariat with updated information.

  •      Opt In/Out of Communications

MDS provides individuals the opportunity to opt out of receiving communications from us when we request information about the user. To update these preferences, users may visit the MDS website or email the International Secretariat.

  •      Opt In/Out of Membership Directory 

MDS also allows our members to opt out of displaying personal information in the Membership Directory. To update these preferences, members may visit the MDS website or email the International Secretariat.


Our sites have security measures in place to protect the loss, misuse and alteration of the information under our control, but we cannot guarantee that our security measures will prevent third-party "hackers" from illegally obtaining this information.


A "cookie" is a small data file that can be placed on your hard drive when you visit certain websites. On the primary domain, MDS uses cookies to give you the best possible experience with the website.  These cookies are also used to ensure we show you content that is relevant to you.  If you continue without changing your settings, you are agreeing to our use of cookies to improve your user experience. 

Note: The MDS site uses related multiple domains, including and This cookie notice only applies to and For other domains of the MDS site, refer to your browser (Firefox, Internet Explore, Chrome) help menu to learn how to disable cookies. Understand that if you disable browser cookies or flash cookies, it may interfere with the proper functioning of website services. Most browsers accept cookies automatically, but can be configured not to do so or to notify the user when a cookie is being sent.

Additionally, be aware that if you visit third-party websites where you are prompted to log in or that are customizable, you may be required to accept their cookies. Since third parties and other non-MDS websites use their own cookies, we cannot control use of these cookies and expressly disclaim responsibility for information collected through them.

Finally, cookies are used to support Google Analytics functionality for website activity tracking. Google Analytics stores information at Google. Read more about Google Analytics privacy and security information.

Links to Other Sites

This site contains links to other websites. MDS is not responsible for the privacy practices or content of other websites. We encourage you to read the privacy statements of each website that collects your personally identifiable information.

Changes to This Notice

MDS reserves the right to revise, amend, or modify this Privacy Notice, our website Terms of Use, and our other policies and agreements at any time and in any manner. Notice of any revision, amendment, or modification will be posted in accordance with our website Terms of Use.