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International Parkinson and Movement Disorder Society

Research Resources

Explore the latest discoveries and find assessments, databases, training, and other tools to support your research. 

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Research resources:

Latest articles      Tools      Education

Other Research Articles & Media

Explore the latest advancements, interviews, reviews and reports from top MDS media channels: 

 

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Moving Along Newsletter

MDS's quarterly newsletter, providing up-to-date information on Movement Disorder advancements, announcements and other news.

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Podcast

Hear from leading movement disorder researchers about their roles in and perspectives on relevant developments in the field.

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Papers

White papers, evidence-based medicine reviews and papers published by MDS groups.

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Scientific Issue Discussions

Controversies and hot topics in Parkinson's disease and movement disorders: scientific advances, new developments, and trends in the field.

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Most Recent Media

 

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Podcast

MDJ Research Article of the Year: Harmonizing genetic testing for Parkinson's disease

October 2024

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Areas of Interest
  • Genetics
  • Parkinson Disease/Hypokinetic Movement Disorders
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  • Podcast

Podcast

An online mindfulness-based group intervention for tics

October 2024

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Areas of Interest
  • Hyperkinetic Movement Disorders
  • Therapies-Other
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  • Podcast

Podcast

Better understanding functional movement disorders • 2024 MDS Congress

October 2024

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Areas of Interest
  • Other Movement Disorders
Resource Type
  • Podcast

Podcast

Which protein is it? Copathologies • 2024 MDS Congress

October 2024

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  • Basic/Translational Neuroscience
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  • Podcast

Podcast

The evolution of tremor • 2024 MDS Congress

October 2024

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Areas of Interest
  • Hyperkinetic Movement Disorders
Resource Type
  • Podcast

Podcast

Genetic dystonias and understanding molecular pathways • 2024 MDS Congress

October 2024

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Areas of Interest
  • Hyperkinetic Movement Disorders
Resource Type
  • Podcast

Research Tools

 

Clinical Outcome Assessments

MDS has developed a variety of clinical outcome assessments that provide reliable, high-quality standards for research in Movement Disorders. 

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Databases

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  MDSGene

Systematic overview of published data on movement disorder patients reported to carry causative gene mutations

https://www.mdsgene.org/

  Accelerating Medicines Partnership Parkinson’s disease (AMP PD) Knowledge Platform

Clinical, whole genome, and transcriptomics data from persons with PD and controls

https://amp-pd.org/

  BioFIND

Observational clinical data and biospecimen (including blood and cerebrospinal fluid) data
Intented to serve as complement to PPMII

https://biofind.loni.usc.edu/

  Critical Path Institute

Standardized patient-level from PD patients involved in past clnical trials

https://c-path.org/programs/cpp/

  Data in Brief (published datasets)
  Fox DEN

Patient-reported outcomes and genetic data from persons with PD and members of their support systems

https://foxden.michaeljfox.org/insight/explore/insight.jsp

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  Levodopa Response Trial Wearable Data

Wearable sensor data collected to understand the feasibility of at-home monitoring of PD symptoms and motor fluctuations

https://www.synapse.org/#!Synapse:syn20681023/wiki/594678

  LRRK2 Cohort Consortium

Data from LRRK2 Cross-sectional Study, LRRK2 Longitudinal Study, and the 23andMe Blood Collection Study

https://www.michaeljfox.org/form/lrrk2-data-use-e-consent

  Neurodegenerative Disease Research (JPND) Global Cohort

Searchable catalogue of cohort studies that covers both disease-focused and general population studies

https://www.neurodegenerationresearch.eu/jpnd-global-cohort-portal/

  Parkinson's Progression Markers Initiative

Longitudinal clinical, biospecimen, and imaging data from persons with PD, prodromal PD, and healthy controls

https://www.ppmi-info.org/access-data-specimens/download-data

  PDGene

Meta-analysis of genome-wide association studies for populations of European descent
Includes data on genetic variants for both PD cases and controls

http://www.pdgene.org/methods

  RNA Sequencing Project

Whole exome and genome sequencing were performed on whole-blood extracted DNA samples

https://www.ppmi-info.org/access-data-specimens/download-data

MDS Research Groups

Basic Science SIG

A forum that brings together basic science professionals interested in movement disorders. 

Learn more

Become a Member


Study Groups

Groups of MDS members that seek to collaboratively study a specific aspect of movement disorders.

About Study Groups

 

Task Forces

Task Force groups form with a specific mandate in mind, usually to address a vital research or other need in the field.

About Task Forces

Education

Courses for researchers

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Clinical Assessment Trainings

The International Parkinson and Movement Disorder Society has established traning materials for select rating scales. Learn about the use of each scale, see examples of a rater administering the test to patients, and to view examples of the rating items. 

Certificate Programs

The Training & Certificate Programs for MDS scales include an examination, which will grant you a Certificate of Completion once you earn a passing score. Case exercises are also included to test your ability to administer the scales.

View programs »

Non-Certificate Video Trainings

These on-demand video modules are available for personal educational purposes. Special reduced rates are available to MDS members.

View video trainings »

 

 

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