Stigma
Stigma surrounding movement disorders often leads to misunderstanding and social isolation for those affected. Addressing this stigma is crucial for improving support and access to care for individuals with these conditions.
Tools: Clinical Care | Research Protocols
Learn more: About | Perspectives
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Tools » Clinical Care
Selected research about how to help patients overcome stigma
Tools » Research Protocols
Papers about improving research and study of stigma
- Stigma, coping strategies, distress and wellbeing in individuals with cervical dystonia: a cross-sectional study
- The Roles of Lifetime Enacted Stigma in Tic Symptoms among Young Adults with Tourette Syndrome
- Understanding domains that influence perceived stigma in individuals with Huntington disease**
* Article is free for MDS Members (No-fee membership available for residents of low-income countries and trainees) / ** Article access managed by an external organization
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Learn more » About the Disparities
Articles about the prevalence, challenges, and experience of stigma
- Stigma in Parkinson’s disease: Placing it outside the body
- If Your Patients Were Too Embarrassed to Go Out in Public, What Would You Do? – Public Education to Break the Stigma on Parkinson’s Disease Using Integrated Media
- Perceived stigma and quality of life in Parkinson’s disease with additional health conditions
- Stigma as a key determinant of health-related quality of life in Parkinson's disease**
- Stigma Experienced by Parkinson’s Disease Patients: A Descriptive Review of Qualitative Studies
- The lived experience of stigma and Parkinson's disease in Kenya: a public health challenge
- Social stigma and self-perception in adolescents with tourette syndrome
* Article is free for MDS Members (No-fee membership available for residents of low-income countries and trainees) / ** Article access managed by an external organization
Learn more » Perspectives
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 One of the outputs from my research was the significant burden and consequences of stigma, which could result in murders on one end of the spectrum, but societal exclusion on the other. The stigma is shocking.”
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“Parkinson’s is not Witchcraft”: Fighting stigma in Uganda
Awardee’s work gives voice to communities underrepresented in Parkinson’s research in Africa
More Resources for Underserved Categories
Areas
- Lack of Resources
- Provider Shortages
- Environmental Exposure
- Geographic Barriers
- Dense Areas: Infection Spread
Populations
- Socioeconomic Status
- Gender / Sex / Orientation
- Race / Ethnicity
- Stigma
- Low Literacy
- Genetic Disparities
- Beliefs
- Rare and Understudied Diseases
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Suggest additional resources for professionals working with underserved areas or populations.