Skip to Content


MDS makes every effort to publish accurate information on the website. "Google Translate" is provided as a free tool for visitors to read content in one's native language. Translations are not guaranteed to be 100% accurate. Neither MDS nor its employees assume liability for erroneous translations of website content.

International Parkinson and Movement Disorder Society
Main Content

        VOLUME 27, ISSUE 1 • MARCH 2023  Full issue »

Illustrated storybook shares experiences of black and brown people living with Parkinson’s disease 

The PD Movers were invited to develop an Educational Guide for Parkinson’s disease (PD) designed specifically for the black and African American community. The book is the result of those discussions and contributions. The book is an intentional model for reaching under-engaged communities of color. 

In partnership with St. Luke African Methodist Episcopal (A.M.E.) Church, we developed an educational tool to create heightened awareness of PD in the black and brown community, as well as create a sense of community and connection. The approach emphasized building trusting relationships and rapport, as well as highlighting the strength of our community. Together, we created the “PD Movers, We Keep Moving” book, which is a compilation of first-person narratives that deliver joyful, empowering and educational messages that are culturally sensitive and engaging, while using vibrant images underscoring the importance of representation.    

The first-person patient and caregiver voices coupled with powerful illustrations have created a bridge that has generated high levels of interest and engagement by addressing identified barriers such as stigma, fear and discrimination. The book is being shared by word of mouth, personal and professional networks, and web links. The e-version has been shared at least 500 times in just the first 2 months, demand for the hard copy version is increasing and many PD organizations are placing copies in their libraries. Many surprising but welcomed anecdotes are coming in. For example, People with Parkinson's Disease are reporting that the book has facilitated them having meaningful conversation with their families after years of being closeted.  

PD MOVERS is an illustrated storybook resource for Black patients, Care Partners and families living and thriving with Parkinson’s disease (PD), produced and supported by Columbia University Irving Institute for Translational Science.

Read more Moving Along:

Full issue  Archives

We use cookies to give you the best possible experience with our website. These cookies are also used to ensure we show you content that is relevant to you. If you continue without changing your settings, you are agreeing to our use of cookies to improve your user experience. You can click the cookie settings link on our website to change your cookie settings at any time. Note: The MDS site uses related multiple domains, including and This cookie policy only covers the primary and domain. Please refer to the MDS Privacy Policy for information on how to configure cookies for all other domains on the MDS site.
Cookie PolicyPrivacy Notice