13th Annual Dystonia Coalition Investigator’s Meeting: Ongoing and Future Projects
Friday, June 5, 2026
Live OnlineVirtual
The Dystonia Coalition is a collaboration of medical researchers and patient advocacy groups that is focused on advancing the pace of clinical and translational research in the dystonias to find better treatments.
10:00 AM - 11:30 AM Eastern Time (ET)
| Time | Session | Speaker |
|---|---|---|
| 10:00 – 10:05 | Introduction Overview of achievements and new and ongoing projects |
Jinnah |
| 10:05 – 10:15 | Natural History Project Updates on enrolled participants and publications |
Perlmutter |
| 10:20 – 10:30 | Biobank Project Updates on collected samples |
Cruchaga |
| 10:35 – 10:45 | Patient Centered Outcomes Project Updates on project completion and data analyses |
Richardson |
| 10:50 – 11:00 | New Soft Signs Project Introduction to study on subtle features seen in dystonia |
Pandey |
| 11:05 – 11:10 | Patient Advocacy Groups Updates and introduction of new plans for the year |
Heishetter & Kuman |
| 11:15 – 11:30 | New News Summary of new projects under development and discussion of future project proposals |
Jinnah |
Learn more about Dystonia Coalition »




