Clinical Outcome Assessment Program Committees
The COA committees oversee all aspects of the assessments program, including licensing, translation, development and training.
COA Program Directors
COA Program Directors Primary Functions: Maintain relationships with other MDS Groups (Committees, Task Forces, and Study Groups), provide guidance as methodological advisors and consultants, and connect Strategic Partners. The Program Directors oversee all COA Program committees.
Directors:
 Tiago Mestre, Director |
 Alvaro Sánchez Ferro, Director |
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MDS Staff Liaison: ratingscales@movementdisorders.org
Clinical Outcome Assessments committees:
Primary Function:
- Develop and publish systematic reviews of rating scales utilized within the Movement Disorders community
- Review assessment/rating scale development proposals that are submitted to the Society
- Provide guidance on the development of new clinical assessments including, but not limited to, aspects such as design issues, pilot and validation studies, integration with other assessments, and interpretation of outcomes
- Set standards and guidelines for the development and validation methodology of assessment tools across multiple modalities
Committee Members:
Aparna Wagle Shukla, Chair
Norbert Kovacs, Vice Chair
Camila Aquino
Mickael Aubignat
Roongroj Bhidayasiri
Pedro Brandao
Kelvin Chou
Stephen Duma
Arunmozhimaran Elavarasi
Florian Krismer
Alia Mansour
Connie Marras
Kigocha Okeng'o
Paraskevi-Evita Papathoma
Carmen Rodriguez Blazquez
Mehri Salari
Nirosen Vijiaratnam
This subcommittee oversees the Prodromal Review Subcommittee
This subcommittee is a subset of the Scientific Evaluation Committe
Primary Function: Review on current rating scales, assessments and check lists for early and prodromal PD.
Members:
Matej Skorvanek, Review Coordinator
Anette Schrag, COA Scientific Evaluation Committee Liaison
Daniela Berg
Ron Postuma
Per Borghammer
Klaus Seppi
Andrea Pilotto
Lana Chahine
Kristina Kulcsarova
Alastair Noyce
Jawad Bajwa
Tiago Mestre
Primary Function: Guiding the field in developing or modifying assessments for early and prodromal PD.
Members:
Daniela Berg, Chair
Anette Schrag, Vice-Chair
Ron Postuma, Vice-Chair
Tiago Mestre
Deborah Hall
Bradley Boeve
Alvaro Sánchez Ferro
Christopher Goetz
Matej Skorvanek
Norbert Kovacs
Maria João Forjaz
Michelle H.S. Tosin
Glenn Stebbins
Pablo Martinez Martin
Primary Function:
- Recommend and approve non-English translations of the MDS-owned scales MDS-UPDRS, MDS-NMS, and UDysRS
- Assist in the development of non-English translation teams, monitor translation development and oversee all aspects of the statistical analysis at each phase of development
- Make recommendations for best practices in the translation and validation of digital tools acquired by the Society
- Manage use of generated rating scales data owned by MDS
Committee members:
Michelle Tosin, Chair
Chi-Ying (Roy) Lin, Vice Chair
Roberta Balestrino
Marieke Dekker
Hanan Khalil
Igor Straka
This committee oversees the Translation Review Subcommittee
This committee is overseen by the COA Translation Steering Committee
Primary Function:
- Develop validated translations of MDS-owned scales including the MDS-UPDRS, MDS-NMS, and UDysRS, to bring wide-spread availability of the scales to non-English speakers.
- The committee will consist of current and past local translation team leaders and statistical experts involved with the scale translation effort.
Committee members:
M. Akbostanci
Zakiyah Aldaajani
Guido Alves
Angelo Antonini
Jawad Bajwa
Madhuri Behari
Roongroj Bhidayasiri
Desislava Bogdanova
Sevasti Bostantjopoulou Kambouroglou
Francisco Cardoso
Esther Cubo Delgado
Marieke Dekker
Richard Dodel
Bjoern Falkenburger
Cristian Falup-Pecurariu
Joaquim Ferreira
Jevgenija Guk
Tanya Gurevich
Uyen Ha
Peter Hagell
Tove Henriksen
Sonia Ivanova
Priya Jagota
Muhammad Javed
Valtteri Kaasinen
Rauan Kaiyrzhanov
Ruta Kaladyte Lokominiene
Zoe Katsarou
Gulay Kenangil
Hanan Khalil
Fatma Khelifi
Hee-Tae Kim
Norbert Kovacs
Arseniy Lavrov
Oleg Levin
Yiming Liu
Jinghong Ma
Pablo Martinez-Martin
Ivan Milanov
Yoshikuni Mizuno
Kin Mok
Bakhtiyor Mukhammedaminov
Per Odin
Oluwadamilola Ojo
Njideka Okubadejo
Genko Oyama
Bart Post
Olivier Rascol
Evzen Ruzicka
Chingiz Shashkin
Joanna Siuda
Matej Skorvanek
Tanja Stojkovic
Igor Straka
Pille Taba
Atsushi Takeda
Zaruhi Tavadyan
Mathias Toft
Tai Tran
Viet Luc Tran
Thiago Vale
Teus Van Laar
Taras Voloshyn
Richard Walker
Ruey-Meei Wu
Ozge Yagcioglu Yassa
Vu Thi Yen
Nazira Zharkinbekova
Primary Function:
- Establish standards and guidelines for electronic assessment tool development in collaboration with the Scientific Evaluation Committee
- Provide supervision and guidance for validation and implementation of electronic assessment builds
- Advise and recommend solutions for issues related to electronic development, device, and technology use of MDS-owned assessments
Committee members:
Rebecca Fuller, Chair
Mariana H.G Monje, Vice-Chair
Lana Chahine
Esther Cubo Delgado
Kathy Dujardin
Arunmozhimaran Elavarasi
Conor Fearon
Cheryl Fitzer-Attas
Sergiu Groppa
Ashwani Jha
Melissa Nirenberg
Santiago Perez-Lloret
Cynthia Poon
Hussain Raji
Ruth Schneider
Travis Turner
Jinyoung Youn
Primary Function:
- Identify and prioritize the need for educational and training requirements for MDS-owned scales
- Provide recommendations and guidelines for the development of new educational and training programs for MDS-owned assessments
- Advise groups on the development of educational programs on assessment tools
- Establish standards for rating scales educational and training programs
- Maintain online and in-person training and certificate programs for MDS-owned rating scales by providing comprehensive reviews of existing training programs and providing recommendations for revisions
Committee members:
Ece Bayram, Chair
Mubasher Qamar, Vice Chair
Manon Auffret
Claudia Del Gamba
Giulia Di Lazzaro
Faranak Ebrahimian Sadabad
Ghazal Haeri
Falgun Maheriya
Yasser Mecheri
Iulia Murasan
Federico Rodriguez-Porcel
Nasrin Salimian
Gamechu Usmael