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Clinical Outcome Assessment Program Committees

The COA committees oversee all aspects of the assessments program, including licensing, translation, development and training. 

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COA Program Directors and Associate Directors 

Primary Functions: Maintain relationships with other MDS Groups (Committees, Task Forces, and Study Groups), provide guidance as methodological advisors and consultants, and connect Strategic Partners. 

Directors and Associate Directors: 

 


Glenn Stebbins, 
Director

Pablo Martinez Martin, 
Director

 


Deborah Hall, 
Associate Director

Tiago Mestre, 
Associate Director

Alvaro Sánchez Ferro, 
Associate Director

 


The Program Directors and Associate Directors oversee the COA committees. 

 

Clinical Outcome Assessments committees:

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  COA Scientific Evaluation Committee

Primary Function: 
- Develop and publish systematic reviews of rating scales utilized within the Movement Disorders community  
- Review assessment/rating scale development proposals that are submitted to the Society  
- Provide guidance on the development of new clinical assessments including, but not limited to, aspects such as design issues, pilot and validation studies, integration with other assessments, and interpretation of outcomes  
- Set standards and guidelines for the development and validation methodology of assessment tools across multiple modalities 

Committee Members: 
Matej Skorvanek, Chair
Michelle H.S. Tosin, Vice-Chair 
Aparna Wagle Shukla
Alberto Espay
Ruey-Meei Wu
Norbert Kovacs
Wassilios Meissner
Galit Kleiner
Ioanna Markaki Anette Schrag
Daniel Weintraub

This subcommittee oversees the Prodromal Review Subcommittee

   - Prodromal Review Subcommittee

This subcommittee is a subset of the Scientific Evaluation Committe

Primary Function: Review on current rating scales, assessments and check lists for early and prodromal PD.

Members: 
Matej Skorvanek, Review Coordinator
Anette Schrag, COA Scientific Evaluation Committee Liaison
Daniela Berg
Ron Postuma
Per Borghammer
Klaus Seppi
Andrea Pilotto
Lana Chahine
Kristina Kulcsarova
Alastair Noyce
Jawad Bajwa
Tiago Mestre

  Early and Prodromal PD Working Group

Primary Function: Guiding the field in developing or modifying assessments for early and prodromal PD.

Members:
Daniela Berg, Chair
Anette Schrag, Vice-Chair
Ron Postuma, Vice-Chair
Tiago Mestre
Deborah Hall
Bradley Boeve
Alvaro Sánchez Ferro
Christopher Goetz
Matej Skorvanek
Norbert Kovacs
Maria João Forjaz
Michelle H.S. Tosin
Glenn Stebbins
Pablo Martinez Martin

  COA Translation Steering Committee 

Primary Function: 
- Recommend and approve non-English translations of the MDS-owned scales MDS-UPDRS, MDS-NMS, and UDysRS 
- Assist in the development of non-English translation teams, monitor translation development and oversee all aspects of the statistical analysis at each phase of development 
- Make recommendations for best practices in the translation and validation of digital tools acquired by the Society 
- Manage use of generated rating scales data owned by MDS 

Committee members: 
Sheng Luo, Chair
Monica M. Kurtis
Michelle H.S. Tosin
Glenn Stebbins
Pablo Martinez Martin
Christopher Goetz, Advisor
 

This committee oversees the Translation Review Subcommittee

 

   - COA Translation Review Subcommittee

This is a subcommittee of the COA Translation Steering Committee 

Primary Function: 
- Assist with the review of MDS-owned scale translations, specifically during Phase I: forward and back translation development. Provide recommendations to translation teams to ensure an accurate translation of the original scale is captured.

Committee members:
Chi-Ying (Roy) Lin
Wael Mohamed
Roberta Balestrino,
Carmen Gasca-Salas
Fabio Barbieri
Gert Geurtsen

   - COA Translation Committee

This committee is overseen by the COA Translation Steering Committee

Primary Function: 
- Develop validated translations of MDS-owned scales including the MDS-UPDRS, MDS-NMS, and UDysRS, to bring wide-spread availability of the scales to non-English speakers. 
- The committee will consist of current and past local translation team leaders and statistical experts involved with the scale translation effort.  

Committee members:
Pablo Martinez-Martin
Glenn Stebbins
Sheng Luo
Michelle Hyczy de Siqueira Tosin
Monica M. Kurtis
Christopher G. Goetz
Jawad A. Bajwa
Hanan Khalil
Zakiyah Al-Daajani
Zaruhi Tavadyan
Ivan Milanov
Jinghong Ma
Yiming Liu
Ruey-Meei Wu (Robin)
Evzen Ruzicka
Tove Henriksen
Bart Post
Teus Van Laar
Pille Taba
Valtteri Kaasinen
Olivier Rascol
Estelle Dellapina
Björn H. Falkenburger
Sevasti Bostantjopoulou
Zoe Katsarou
Tanya Gurevich
Nir Giladi
Madhuri Behari
Norbert Kovacs
Angelo Antonini
Genko Oyama
Atsushi Takeda
Chingiz Shashkin
Nazira Zharkinbekova
Rauan Kaiyrzhanov 
Hee-Tae Kim
Jevgenija Guk
Rūta Kaladytė Lokominienė
Guido Alves
Joanna Siuda
Francisco Cardoso
Joaquim J. Ferreira
Thiago Cardoso Vale
Cristian G. Falup-Pecurariu
Arseniy Lavrov
Oleg S. Levin
Tanja M. Stojkovic
Matej Skorvanek
Esther Cubo Delgado
Per Odin
Peter Hagell
Priya Jagota
Roongroj Bhidayasiri
Cenk Akbostanci
 Gülay Kenangil
 Özge Yağcıoğlu Yassa
 Muhammad Athar Javed
Bakhtiyor Mukhammedaminov
Taras Voloshyn

  Electronic COA Committee

Primary Function: 
- Establish standards and guidelines for electronic assessment tool development in collaboration with the Scientific Evaluation Committee  
- Provide supervision and guidance for validation and implementation of electronic assessment builds  
- Advise and recommend solutions for issues related to electronic development, device, and technology use of MDS-owned assessments 

Committee members: 
Rebecca Fuller, Chair
Mariana H.G Monje, Vice-Chair
Lana Chahine
Kathy Dujardin
Cheryl Fitzer-Attas
Jinyoung Youn
Santiago Perez-Lloret
Sergiu Groppa
Travis Turner

  COA Education and Training Committee

Primary Function: 
- Identify and prioritize the need for educational and training requirements for MDS-owned scales   
- Provide recommendations and guidelines for the development of new educational and training programs for MDS-owned assessments 
- Advise groups on the development of educational programs on assessment tools  
- Establish standards for rating scales educational and training programs 
- Maintain online and in-person training and certificate programs for MDS-owned rating scales by providing comprehensive reviews of existing training programs and providing recommendations for revisions 

Committee members: 
Cristian G. Falup-Pecurariu, Chair
Ece Bayram, Vice-Chair
M Cenk Akbostanci
Pramod Pal
Muhammad Hashmat
Katarzyna Smilowska
Jinghong Ma
Abdoulaye Bocoum
Cholpon Shambetova

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