Functional Movement Disorders Study Group


Kathrin LaFaver
Chair


Alberto Espay
Co-Chair

MDS Staff Liaison: Ken Buesing 

Steering Committee

Alberto Espay, Mark Hallett, Kathrin LaFaver, Tony Lang, Carine Maurer, Francesca Morgante, Jon Stone, and Tiago Teodoro

Members
Africa

South Africa: David Anderson, Maria Damianova

Americas

USA: Danny Bega, Stewart Factor, Mark Hallett, Anhar Hassan, Vanessa Hinson, Joseph Jankovic, Jorge Juncos, Katie Kompoliti, Curt LaFrance, Codrin Lungu, Victor Mark, Carine Maurer, Raja Mehanna, David Perez, Christopher Stephen, Jeff Waugh, Allan Wu, Xin Xin Yu
Canada: Anthony Lang, Sarah Lidstone, Tiago Mestre
Mexico: José Fidel Baizabal

Asia and Oceania

Australia: Alexander Lehn
India: Sanjey Pandey
South Korea: Jung Park

Europe

Czech Republic: Tereza Serranova
Germany: Christos Ganos, Andreas Joos
Greece: Maria Stamelou
Italy: Benedetta Demartini, Michele Tinazzi
Netherlands: Hans Koelman, Marina de Konig Tijssen, Jeanette Gelauff
Spain: Isabel Pareés Moreno
Switzerland: Selma Aybek
United Kingdom: Mark Edwards, Richard Kanaan, Francesca Morgante, Jon Stone, Tiago Teodoro
 

 

About the Functional Movement Disorders (FMD) Study Group

Background

Functional Movement Disorders (FMD) are among the most common reasons for patients to present to a movement disorder specialist. Symptoms include tremor, dystonia, chorea, weakness, gait disorders, cognitive complaints and dysarthria, and diagnosis needs to be ascertained by movement disorder neurologists to identify phenotypic features that are inconsistent and incongruent with the wide range of organic disorders. Patients with FMD frequently suffer from comorbid anxiety and depression, however presence of a psychological stress factor is no longer required for the diagnosis of FMD by DSM-V criteria. Despite their common occurrence, the etiology of FMD is poorly understood and there are no defined treatment guidelines. Patients often feel stigmatized and there is a lack of public awareness, access to treatment resources and funding for research.

Goals/Mission

  • To create standardized instruments for assessment of FMD to aid in diagnosis, longitudinal symptom tracking and measuring outcomes in clinical trials.
  • To collaborate on a multicenter database/clinical registry for FMD for research purposes, generating epidemiologic data and comparing clinical features across different populations.
  • To identify research goals in FMD in regards to epidemiology, risk factors, pathophysiology, biomarkers, and therapeutics.
     

Ongoing Projects

Our group is working on creating a pilot study for an international FMD registry and obtaining funding for collaborative research projects. A collaboration with NINDS is being actively pursued to advocate for federally-funded research into FMD.

With international members of the FMD Study Group, a state-of the-art review article was recently completed, titled “Functional Neurologic Disorders: Current Concepts in Diagnosis and Treatment”. This article, published by JAMA Neurology, is expected to serve as a reference to clinicians and raise awareness and education on functional disorders across the world.

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