Non-Motor Symptoms in Parkinson's Disease Study Group

Goals

1. To collect new and novel patient and carer reported information on Non-Motor Symptoms (NMS) of Parkinson’s disease from around the world
2. To develop a MDS version of a new PD non motor symptoms scale
3. To ensure that comprehensive and unified NMS assessments in clinical trials and scientific studies are increasingly used to increase the “real life” value of clinical trials and clinical studies
4. To set up and start international cross cultural studies, to improve existing tools for NMS (e.g. NMSS and NMSQ)
5. To develop animal models addressing non-motor phenotypes of PD
6. To refine, validate and establish non-motor subtypes of PD and related biomarkers

•  Bodily mapping of symptoms and emotions in Parkinson’s disease – Data will be collected from both in-person study visits and online survey. 
• Vision in PD – Multicenter collaborative observational, longitudinal follow-up study evaluating the prevalence, severity, and impact of vision disturbances in patients with PD. 
• Living with long-term conditions scale - Cross-cultural adaptation and relationship with non-motor symptoms in different populations. 
• Review on apathy in PD.