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International Parkinson and Movement Disorder Society
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Speech Impairment in Movement Disorders Study Group

This international and multidisciplinary group aims to share clinical and research experience across the world in all aspects of communication and swallowing difficulties of patients with Movement disorders.


Membership of the Speech and Swallowing in Movement Disorders Study Group includes specialists in hyperkinetic/dystonic voice disorders, swallowing, acoustic acquisition and analysis, facial expression, clinical and therapy innovations, and measuring the impact of speech impairment. 


The group's First Speech and Swallowing in Parkinson's Disease School.

Projects

Speech and Swallowing Schools 

Since the formation of the group in 2017, we have organized annual Speech and Swallowing schools under the auspices of the MDS.  

Course history: 

  • 2017: Aix-en-Provence; France; Directors: Dr Serge Pinto and Dr Elina Tripoliti
  • 2018: London, UK; Directors: Dr Elina Tripoliti and Dr Patricia Limousin  
  • 2019: Prague, Czech Republic; Directors: Dr Jan Rusz and Dr Elina Tripoliti
  • 2021: Virtual School; Directors: Dr Elina Tripoliti and Dr Hanneke Kalf
  • 2022: Virtual School MDT Team Work; Directors: Dr Elina Tripoliti, Dr Ota Gall and Dr Ingrid Sturkenboom 
  • 2023: Prague, Czech Republic, Nov 3-4, 2023. View details »

eLearning Module Development

In 2022-2023, the group members have been involved in producing online elearning education modules for speech and swallowing.

Module authors:

  • Dysphagia – John Dean and Dina Shpunt 
  • Speech dysfunction – Elina Tripoliti 
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Publications

The group intends to propose a Special Issue for the MDS journal editors on “Motor and non-motor aspects of speech and language in PD.”

The proposed issue would focus on important facts, including: 

  • The neurological bases of normal speech production and speech impairment in PD; 
  • The description and assessment of speech impairment in PD; 
  • The relevance of a rehabilitation program targeting speech impairment in PD patients. 
  • Speech impairment in PD is usually only investigated from its motor aspects 
  • Higher-order cognitive dysfunctions contribute to dysarthria: how? Which of them? Etc. 
  • Speech is a component of a larger competence: communication 
  • Emotional and motivational aspects/deficits contribute to speech impairment in PD 
  • Care of patients with advanced PD. 
  • Case studies of rehabilitation of patients with Atypical PD and Dystonia. 

Future Projects

Develop a 3-Year Plan

The group plans to to develop a 3-yrs plan in line with the MDS priorities and to encourage the following: 

  • Education 
  • Collaborating with other MDS Study Groups  
  • Organize educaetional material (e.g. video) to support our guidelines for speech recording and acoustic analysis  

Leadership 

Elina Tripoliti Serge Pinto
Chair: Kristina Simonyan   Co-Chair: Michael Barbe Co-Chair: Jan Rusz

Steering Committee:

Michael Barbe
Michelle R. Ciucci
Cynthia M. Fox
Jan Rusz
Kristina Simonyan
Elina Tripoliti
Takashi Tsuboi
Adam P. Vogel

MDS Staff Liaison: Alisa Streets


Members 

Supraja Anand
Julie M. Barkmeier-Kraemer
Bogdan Ciopleias
Michelle R. Ciucci
Miguel Soares Coelho
John M. Dean
Cynthia M. Fox
Johanna G. Kalf
Yael Manor
Jiri Mekyska
Caroline Moreau
Michal Novotny
Maira Rozenfeld Olchik
Serge Pinto

Lorraine A. Ramig
Angela C. Roberts
Rui Rothe-Neves
Ellika Schalling
Gabriella Sharpe
Dina Shpunt
Tabea Thies
Elina Tripoliti
Takashi Tsuboi
Tereza Tykalova
Adam P. Vogel
Magdalena Wojcik-Pedziwiatr
Raluca-Maria C. Zosin, Sr.

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