Non-English Scale Translation Application
* = required field
Please complete and submit this application to express your interest in leading a Non-English Translation Program for the MDS-UPDRS or UDysRS. This application will be reviewed by the Chairs of the MDS Rating Scales Program and MDS Translation Steering Committee. If you experience problems submitting this form, please email the MDS Secretariat at email@example.com.
Translation Team Member Identification (Please identify up to three in each area)
Mark FE for member who is fluent in English
Mark NLS for member who is a native speaker of the target language
Mark MDS for movement disorder specialist
Please provide the names of two movement disorder specialists who are NOT involved in this program, but could be used by the Steering Committee to review the translation independently.*
Each translation program will be responsible to procure its own funds to cover the costs and expenses associated with conducting the study locally.
The obligatory cost for the central data submission process and statistical testing conducted by MDS for consistent methodology and infrastructural setup of the non-English translation program is $15,750. Please work with MDS to procure sponsorship or funding for these costs.
Please use the budget outlined below to provide the estimated project expenses in each area including: conducting all components of the translation/back translation, local cognitive testing, collection of the required patient sample size for clinimetric testing and data entry into the MDS-sponsored central repository.
To help each program make a reasonable budget, we provide an outline to cover the program components which include: conducting all components of the translation/back translation, local cognitive testing, collection of the 250 or 350 patient sample for clinimetric testing and data entry into the MDS-sponsored central repository.
After submission of this application, the Translation Steering Committee will vote on your proposal. If approved, you will then need to procure the funds for local costs of the study and obtain approval from your local IRB or ethics committee. You may also contact MDS to assist with procuring sponsorship for program support. The MDS Secretariat will provide a Collaborative Research Agreement which will grant you permission to translate the scale and establishes that copyright of the translation is maintained by MDS. If the application is not approved, the Program Lead(s) will be contacted with suggestions and advice on improving the application.
Please list any pharmaceutical or foundation contacts who can be approached for sponsorship below.