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International Parkinson and Movement Disorder Society
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        VOLUME 27, ISSUE 4 • December, 2023.  Full issue »

Second World Movement Disorders Day elevates patient voices  

 

Movement disorders are growing in prevalence, but patients are often not diagnosed because even most healthcare professionals do not know what a movement disorder is. We are working to change that. 

The 2nd annual World Movement Disorders Day brought twice the amount of global attention as its inaugural year, reaching 7 million people around the world through social media and news coverage.  

As the founding organization behind the awareness day, MDS contributed to the conversation this year by elevating patient voices.
Six incredible people living with movement disorders shared their stories: 

 

Charles Sabine brought international attention to Huntington's disease.

Nisshaa Muniandy is an inspiring teacher, writer, and advocate with dystonia.

Peter Morrison is a neurologist who helps treat others with Tourette syndrome.

Beth Harris is an active adventurer with Restless Leg Syndrome. 

Rodrigo Mendes summits mountains after his Parkinson's disease diagnosis. 

Roller skating helps Amanda Siqueira with her dystonia symptoms. 

The event sparked news coverage, onsite events, and social discussions in more than 40 languages all across the globe.
View the conversation on Twitter, Facebook, and Instagram.

Thank you to all who shared their stories, gave their expertise, translated information, or reached out to their audiences to support this important cause!  

The importance of raising awareness isn't limited to November 29. The awareness effort has a dedicated webpage where you can find patient stories, essential facts videos by world renowned experts and a social media toolkit with icons, images and facts to help you share about these complex disorders throughout the year. Use the #MoveDisorder toolkit (and hashtag) to share about these complex disorders anytime.

View toolkit »

 

 

Read more Moving Along:

Full issue    Archives

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