|Chair: Elina Tripoliti
||Co-Chair: Serge Pinto
John Dean, USA
Hanneke Kalf, Netherlands
MDS Staff Liaison: Ken Buesing
As a newly formed, international and multidisciplinary group, our aim is to share clinical and research experience across the world in all aspects of communication and swallowing difficulties of patients with Movement disorders.
Additional Information (background, current or ongoing projects, etc.):
1. MDS Speech and Swallowing Schools
a. 3rd Speech and Swallowing in Parkinson’s Disease MDS School (Charles University, Department of Neurology, Prague, Czech Republic; 26-27 July 2019)
Encouraged by the success of the first (Aix-en-Provence, France, 2017) and the second school (London, UK, 2018), we organized a third ‘Speech and Swallowing in Parkinson’s disease MDS school’ in Prague (Czech Republic). The course director was Dr Jan Rusz, and co-director Dr Elina Tripoliti under the auspices of Prof. Evzen Ruzicka. Several members of the study group (Serge Pinto, Hanneke Kalf, Cynthia Fox, Jan Rusz, Elina Tripoliti, Irena Rektorova) participated as faculty.
The main objective of this course was to provide an opportunity for speech therapists, allied health professionals, neurologists, neuroscientists, speech engineers to keep informed about clinical and research aspects of speech and swallowing in Movement Disorders. Training sessions, in the presence of patients, allowed attendees to interact around acoustic analysis of speech, perceptual evaluation, and swallowing examination. There were 40 participants.
b. Future plans
Pending on the feedback and the MDS education priorities, we identified the possibility of organizing a 4th school next year, 2020.
The opportunity to organize a multidisciplinary Allied Health school is very welcome and it was discussed.
2. Editorial activity
Serge Pinto and Caroline Moreau published this year (2019) a viewpoint in Movement Disorders that focused the attention of the readers to ‘Misconceptions of speech impairment in Parkinson’s disease’ (https://doi.org/10.1002/mds.27791)
The preparation of a MDS Special Issue
For 2020, we intend to propose a Special Issue for the MDS journal editors on “Motor and non-motor aspects of speech and language in PD”. The aim of this special issue would be to focus on important facts:
• The neurological bases of normal speech production and speech impairment in PD;
• The description and assessment of speech impairment in PD;
• The relevance of a rehabilitation program targeting speech impairment in PD patients.
• Speech impairment in PD is usually only investigated from its motor aspects
• Higher-order cognitive dysfunctions contribute to dysarthria: how? Which of them? Etc.
• Speech is a component of a larger competence: communication
• Emotional and motivational aspects/deficits contribute to speech impairment in PD
• Care of patients with advanced PD.
• Case studies of rehabilitation of patients with Atypical PD and Dystonia.
3. Future Plans
We intend, in parallel with the Special Issue preparation, to provide some information/opinion on speech evaluation and devices related to speech impairment management in the 2020 or 2021 MDS congress.
We shall investigate applying for grants appropriate to the aims of the group, in particular ones that promote multidisciplinary work and dissemination of findings to patients.