Resources on Sleep, exercise, and information resources in Flemish – translation may be available
As part of the program, two members of our team (Clara and Moran) made presentations on exercise and sleep hygiene during lockdown. This program was conducted in Dutch and can be found online at https://www.youtube.com/watch?time_continue=1936&v=YVV5LbPZrVQ&feature=emb_logo
(Segment on exercise with Clara begins at 32:18, demonstration at 41:44)
(Segment on sleep hygiene with Moran follows at 53:58 )
Further, there were possibilities for Q&A with the experts and these have been published at https://www.parkinsonliga.be/corona-vraag-en-antwoord
LSVT patients' resources a lot, they are mostly free and now they have a Friday LOUD group from all over the world: https://blog.lsvtglobal.com/lsvt-resources-for-people-with-pd/
Regular communication forums – weekly and sharing telehealth guidelines
LSVT Global resources Including ongoing live webinars
It is a free online video exercise project for people with Parkinson that started as an EPDA response to the lockdown situation created by the covid-19 pandemic. It includes instruction exercise videos that are challenging and surprisingly fun by combining voice, movement and cognition all into one; and then its application to people with Parkinson invited to participate in live sessions.
The content page includes:
- Episode 1 – The body speaks & spells
- Episode 2 – What happened to Monday?
- Episode 3 – Punchalicious! Can I punch you now?
- Episode 4 – Moving for something new
- Live sessions
- What is the EPDA ExerciseCast project?
- Why use a dual or multitask training approach?
- Related reading
- Parkinson Foundation
- APDA - Online and Free Online Courses
- APDA Wisconsin
- APDA St. Louis
- European Parkinson's Disease Association
- POWER FOR PARKINSONS
- Dance for PD
- Parkinson's Nebraska
Neuropsychology assessments transferred to telehealth, with supporting guidelines
Teleneuropsychology (TeleNP) in Response to COVID-19
A range of Multi-disciplinary resources put together to support patients
The statement was developed by our hospital and was recently translated into English. It is also added to the website of the WCPT.
Speech-language therapy general:
Also from our hospital with the Dutch SLP Association, translated in English: https://www.nvlf.nl/stream/fact-sheet-covid-19
And also published on the covid website od the Dysphagia Research Society (DRS): https://www.dysphagiaresearch.org/page/COVID-19Resources
The Dutch Parkinson Association has a covid webpage with exercise videos: https://www.parkinson-vereniging.nl/corona-bewegen?fbclid=IwAR2m2i1F4v-83SBeAU815ODoXsW6bI-hTsgxQ_WJnDVC47hib0bwY7k_IiY
Nursing / NGO
developed a range of resources for people living with Parkinson’s ranging from information and assistance in staying safe. A key resource being information to support patients identify safe exercise resources when they are looking online.
1. Planning therapeutic activities
1.1. Meeting of health professionals by video-conference using different platforms (Google Meet, Hangout, Jitsi, Skype, Zoom) in order to organize our therapeutic plans.
2.1. Intensifying our contact with PwP and their families/caregivers by WhatsApp (individual or group)
2.2. Therapy diary: we asked all patients to write down in a sheet, day, time and activities performed along day.
2.3. Stimulating social ties by video calls using WhatsApp. A challenge is use another platform for video and audio conferencing such as hangout or zoom to include more participants during video call. However our patients do not experience on handling these programs.
3. Promoting Education in health for patients, caregivers and families
3.1. Nursing team made video explaining safe greetings and self-care
3.2. Translating educational materials from WHO
3.3. Online form to assess freezing of gait (FOG-Q) and quality of life (PDQ39). It is important to notice that all Portuguese-speaking patients can access this form. After fill out they receive the result via email. This strategy was primarily designed for our patients; however, we thought other PwP could benefit from this strategy. Thus, we disclose the form in the Brazilian territory as well as other Portuguese-speaking countries. The form is available at https://bit.ly/2WWGfhX
4. Activities involving executive functions
4.1. Reading books, newspapers, magazines
4.2. Listening and singing songs
4.3. Playing board games, when possible
4.4. Practicing manual activities (crafts, knitting, etc)
4.5. Learning a new language
4.6. Talking to family members
5. Physical Exercises
5.3. Muscle strength