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International Parkinson and Movement Disorder Society

Moving Along  newsletter

 June 2026   Vol. 30, Issue 2

MDS's quarterly newsletter, providing up-to-date information on new developments in the field of Movement Disorders, as well as MDS announcements and other news.

Quantifying the enduring gender gap in Movement Disorders research

Findings from the Women in Movement Disorders SIG show that progress in gender representation in Movement Disorders research is slow, uneven, and insufficient.

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Prof. David Burn

Message from the MDS President

The future of MDS will be shaped by the voices we choose to elevate today. Learn about new opportunities to engage patients, carers, and young members in the work ahead.

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Society News

Start now to become a future President of MDS

“There is no secret to getting involved as a leader in MDS.” The Chair of the Nominating Committee outlines the pathway for emerging leaders.

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Bringing the patient and carer voice to MDS

Bringing the patient and carer voice to MDS 

Patients and carers can now volunteer to provide valuable perspectives for MDS research and initiatives.  

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Scientific Updates

How to manage cognitive challenges in Parkinson's disease in rehabilitation 

Although cognitive rehabilitation remains an emerging intervention with an evolving evidence base, it already represents a meaningful component of a comprehensive care plan. 

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The next step in evaluating freezing of gait: New consensus definitions  

Progress in developing new treatments for FOG has been limited by a lack of standardization; an updated consensus-based definition of FOG has been proposed to help unify the scoring of FOG episodes and their various phenotypes.

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Young Members Group Research Highlights

A biomarker-based classification of corticobasal syndrome 

Study aims to classify DBS patients to better understand the different pathologies underlying CBS, and to help improve diagnostic accuracy and targeted treatments.

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Altered dopamine metabolism and response to treatment with levodopa/carbidopa in MCT8 deficiency

Is levodopa/carbidopa a viable therapy for Allan-Herndon-Dudley syndrome (AHDS)? This paper investigates the role of the dopaminergic pathway in AHDS. 

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Prevalence of Parkinson's disease in a town of the central highlands of Peru: A population‐based study

See how a door-to-door population study compares PD prevalence to global data, and the cultural challenges to gathering this data. 

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Features

My journey with the Dystonia Study Group

“Despite being a new member of the group, I was given the opportunity to present a synopsis of my own project on video-based evaluation of dystonia.” 

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My journey with the MDS Infection-Related Movement Disorders Study Group 

“The Study Group exemplifies how collective effort can advance understanding of uncommon but important neurological disorders while fostering meaningful professional relationships.” 

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From paper to pixels: The MDS eCOA Committee's quiet but essential work

From paper to pixels: The MDS eCOA Committee's quiet but essential work

85% of MDS COAs are validated virtually in REDCap, and non-English versions are underway. 

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MDS highlights ongoing story of progress for World Parkinson's Day

MDS highlights ongoing story of progress for World Parkinson's Day 

The Social Media Editorial Board told the story of “people and progress” in PD — highlighting the individuals behind key discoveries and reinforcing that the story of PD continues to evolve. 

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Dr. Anthony Lang honored for pivotal contributions to the field

Dr. Anthony Lang honored for pivotal contributions to the field

An interview with the esteemed recent recipient of the AAN Lifetime Achievement Award for Clinically Relevant Research.  

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Dr. Anthony Lang honored for pivotal contributions to the field

Updated Digital Tools and Technologies Repository shines a light on the emerging technology landscape 

Growing directory spans apps, software platforms, and standalone devices. 

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In Memoriam: Prof. Regina Katzenschlager

In Memoriam: Prof. Regina Katzenschlager 

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Event Highlights

Young Members Group hosts first quarterly town hall

The first event focused on “How to get involved with the MDS.” 

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Landmark first MDS-African Section Parkinson’s disease and movement disorders conference

The hybrid event brought together more than 130 colleagues from across the African continent and 230 online registrations. 

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Building capacity and lasting networks: Reflections from the MDS African Section Train-the-Trainer Program

Ten trainers were selected from diverse healthcare systems and practice environments across Africa, and are now educating their local colleagues. 

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World Parkinson's Congress: A unique event uniting everyone across the PD community

An inside look at the history and growth of the event that brings together clinicians, researchers, other health professionals, caregivers, patients, and even their kids.  

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Strengthening the pediatric movement disorders community in Latin America 

The event represents a significant milestone in its mission to foster regional collaboration and academic excellence in the Latin American pediatric movement disorders community. 

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Botulinum toxin guided injection workshop for cervical and other focal dystonias 

Neurologists from 18 countries came to Dublin, Ireland to attend the 2-day interactive MDS-European Section teaching course. 

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Member Updates

NEW: Keep up with member changes, passings and more. 

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Postings

Browse job openings, grants, fellowships, and other opportunities. 

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A stack of Moving Along issues.    

 

Browse the Moving Along archives.

Read previous issues

Editorial Board

Katarzyna Smilowska, MD, PhD
Moving Along Editor (2023-2025)

Dr. Katarzyna Smilowska is a neurologist specializing in Movement Disorders at the 5th Regional Hospital in Sosnowiec, Poland. She has trained and conducted research at Radboud University Medical Center, Queen Square, and Christian-Albrechts University. She is actively engaged in international collaborations, serving on committees and task forces within MDS, as well as on committees and panels of the European Academy of Neurology.

Catalina Cerquera-Cleves, MD, MSc

Daniel G. Di Luca, MD

 

Shaimaa El-Jaafary, MD

Sergio Rodriguez-Quiroga, MD

Indu Subramanian, MD

Daniel Gams Massi, MD 

Vikram Holla, MD, DM 

Elie Matar, BSc(Adv), MD, PhD, FRACP

Vanessa Carvalho, MD