PKAN Disease Rating Scale (PKAN-DRS)
Assess domains of cognition, behavior, and disability with scores based on neurological signs in patients with pantothenate kinase-associated neurodegeneration.
Permission is required for each single use of the MDS Clinical Outcome Assessments.
The PKAN Disease Rating Scale (PKAN-DRS) was developed to assess domains of cognition, behavior, and disability with scores based on neurological assessment of dystonia, parkinsonism, and other neurological signs in patients with pantothenate kinase-associated neurodegeneration (PKAN).
Authors: Alejandra Darling, Cristina Tello, Marıa Josep Martı, Cristina Garrido, Sergio Aguilera-Albesa, Miguel Tomas Vila, Itziar Gaston, Marcos Madruga, Luis Gonzalez Gutierrez, Julio Ramos Lizana, Montserrat Pujol, Tania Gavilan Iglesias, Kylee Tustin, Jean Pierre Lin, Giovanna Zorzi, Nardo Nardocci, Loreto Martorell, Gustavo Lorenzo Sanz, Fuencisla Gutierrez, Pedro J. Garcıa, Lidia Vela, Carlos Hernandez Lahoz, Juan Darıo Ortigoza Escobar, Laura MartíSanchez, Fradique Moreira, Miguel Coelho, Leonor Correia Guedes, Ana Castro Caldas, Joaquim Ferreira, Paula Pires, Cristina Costa, Paulo Rego, Marina Magalhaes, María Stamelou, Daniel Cuadras Palleja, Carmen Rodríguez-Blázquez, Pablo Martínez-Martín, Vincenzo Lupo, Leonidas Stefanis, Roser Pons, Carmen Espinos, Teresa Temudo, and Belén Perez Dueñas
Original Publication │ View the Scale (PDF) Permission required for use
- Acronym: PKAN-DRS
- Year Published: 2017
- Last Updated: Unchanged since publication
- Assessment Type: ClinRO
- Estimated Time to Complete: 10-15 minutes
- Available Translations: None
Eletronic builds: REDCap
To request permission to use this Rating Scale, please fill out a Permission Request Form.
Inclusive Language in Clinical Outcome AssessmentsHealthcare providers should tailor the language used in COAs to reflect each patient’s gender identity. In grammatically gendered languages, the practice includes making appropriate linguistic adjustments to ensure communication is respectful and inclusive throughout the assessment process. |